Research Ethics and the IRB Regime — Quiz

Which document, produced in 1947, first articulated the principle that 'the voluntary consent of the human subject is absolutely essential'?

The Tuskegee Syphilis Study was ended in 1972 primarily because of which of the following?

Under the Belmont framework, which principle most directly addresses the question of whether research burdens are concentrated on populations selected for their powerlessness rather than their relevance to the research question?

What did Latanya Sweeney's research on deidentified data demonstrate?

Which review pathway under the 2018 Common Rule applies to most interview and focus-group research with non-vulnerable adults?

Laura Stark's central finding in *Behind Closed Doors* was that IRB decisions are primarily shaped by which of the following?

The CARE Principles for Indigenous Data Governance were designed to complement which other set of data principles?

Which of the following best describes the ethical problem raised by the Henrietta Lacks case, as distinct from the Tuskegee case?

Explain what 'therapeutic misconception' means and describe one way a researcher might try to prevent it during the consent process.

What is the 'journalism asymmetry' critique of the IRB regime, and on what grounds has it been defended?

Briefly describe two specific changes made to the Common Rule in its 2018 revision that were responsive to critiques from social scientists.

The cases that produced the modern research ethics regime — Nazi medical experimentation, Unit 731, Tuskegee, Henrietta Lacks, Milgram, and Zimbardo — differ enormously in severity and character. Drawing on at least three of these cases, analyse what structural features they share that the IRB regime was designed to address. Then evaluate at least two critiques of the regime's adequacy for contemporary sociological research, explaining whether you find those critiques persuasive and why.